News
January 2024
PPI Ignite Network statement on research ethics committee approval
There is a distinction between the requirement for approval from a research ethics committee and the ethical practice of research. Ethical practice of research is always expected. There are a number of guidelines available or under development that focus on ethical practice of PPI.
This statement from the PPI Ignite Network is intended to clarify if approval from a research ethics committee is required prior to public and patient involvement in research.
“Approval from a research ethics committee is not required for public and patient involvement (PPI) in the idea generation, planning, design, interpretation of findings, or dissemination stages of research. During PPI, contributors are not research participants or data providers.”
Disclaimer:
This information is for general purposes only. It is the responsibility of the research team to decide about research practices. They need to comply with research integrity obligations and ensure that ethical, data protection or safeguarding requirements are met. All principal investigators have a duty of care to members of their research team, including PPI contributors.
Access the statement HERE.
18-19th August 2023
Second Annual Summer School
The Second Annual INITIative Summer School was held at the Strand Hotel, Limerick this past weekend. We had attendance from around the country including St Vincent’s University Hospital, Mater Misericordiae University Hospital, Midland Regional Hospital Tullamore, University Hospital Limerick, Galway University Hospital, Tallaght University Hospital, University Hospital Waterford, Connolly Hospital Blanchardstown, Our Lady of Lourdes Hospital Drogheda, Mercy University Hospital, University College Cork, and the University of Limerick.
Speakers included:
Prof Glen Doherty- Pragmatic Study Designs in IBD, Writing and Publishing
Dr Aonghus Lavelle- Statistics for Study Design
Dr Orlaith Kelly- Funding and Ethical Considerations
Dr Liz Ryan- Incorporating Lab and Translational Studies
Prof Marietta Iacucci- Endoscopy in IBD Research
Dr Lakshman Kumar- Developing Core Outcome Measures for Intervention Studies in Patients with IBD Who Have Stomas
Workshops were led by Prof Doherty, Dr Lavelle, and Prof Iacucci to help develop collaborative research studies.
We look forward to seeing you all again next year!
Save the Date!
INITIative Summer School
Starts: Friday, August 18th 2023 @ 2:30pm
Ends: Saturday August 19th 2023 @ 12:30pm
Location: The Strand Hotel Limerick
Research related education & workshops
(formal agenda to follow)
All are welcome, dinner will be provided, as well as overnight accommodation on a first come first served basis
Register your interest by emailing: c.coe@svuh.ie
19 May 2023
World IBD Day
Staff at St. Vincent’s University Hospital wore purple to raise awareness of Crohn’s Disease and Ulcerative Colitis for World IBD Day
Summer 2022
First Annual Summer School 2022
05 December 2017
INITIative December Meeting
INITIative will be hosting an Infliximab Therapeutic Drug Monitoring workshop on Dec 15th in St. Vincent’s University Hospital. All are welcome to attend and asked to confirm their attendance by emailing initiativeibd@gmail.com
Please click here for more details
13 November 2017
INITIative @ ISG Winter Meeting 2017
At the upcoming ISG winter meeting, INITIative will host a session on IBD Cloud Based Solutions presented by Professor Glen Doherty and facilitate an open forum for those interesting in collaborating with the network to pitch their ideas.
INITIative Meeting Agenda. Click here
New Studies for INITIative. Click here
10 August 2017
“Gut reactions: Tackling the rising incidence of IBD”
Prof Glen Doherty was recently interviewed for The Medical Independent where he discussed the rising numbers of IBD in Ireland and how improving our clinical trials infrastructure will benefit patients.
You can read this interview here.
03 July 2017
Current Project: INITIative sponsored Public and Patient Involvement (PPI)
This project seeks to understand how IBD from a patient perspective through focus group sessions. The themes that this study explores include knowledge of IBD; satisfaction with care; the impact of IBD on day to day living; perspectives on quality of life; and understanding of the current IBD research. The study was designed with patient and clinician involvement and so far we have conducted focus groups in three hospitals in three counties: Dublin, Galway and Mayo.
To date the focus groups sessions have been extremely informative and have provided in-depth insight into the themes discussed. Notable recurrent themes include the hope for a cure; the need for better regimens of care including a focus on treating acute pain; the negative impacts of stress on disease activity and positive impacts mindfulness/ counselling programmes; the potential benefits from dietary interventions; the need for more understanding and acceptance among the general public about the range of symptoms associated with IBD; the financial burden of IBD care; and the restructuring of how IBD patients are cared for as inpatients.
Several further focus group sessions are planned and thematic analysis will be applied to the data collected. INITIative will then produce an “IBD Patients’’ Perspective Roadmap for Ireland” which will be used to inform research priorities and improvements in care at the national level.
19 May 2017
World IBD Day
Staff at St. Vincent’s University Hospital went purple for World IBD Day and to raise awareness of Crohn’s and Colitis
